A mother of two from Portland is taking the issue of her children’s autism and the state’s response to it very seriously.
Sara Lee and her husband, Jeff, are the parents of a 6-year-old girl and a 4-year to 6-month-old boy.
The Lee’s say their family was told by the Oregon Department of Health that the condition is so rare that it should be considered an autism spectrum disorder.
“We are now being told that we need to do something, and I don’t understand why that is,” said Sara Lee.
The department says they’re not a danger to themselves or others, and they’ve had no problems with their children.
But that’s not the case for Jeff Lee.
He says the state has gone out of its way to cover up the true nature of his child’s condition.
The state has been caught in a debate over autism, and it’s one that’s been going on for years. “
The state is just covering up what’s really happening.”
The state has been caught in a debate over autism, and it’s one that’s been going on for years.
It started with a study that found autism rates were higher in rural areas than urban areas.
The CDC then created a nationwide autism registry in the 1990s, and now it’s become a major topic in politics and the media.
Some experts say the state is overstating the prevalence of autism in its data.
“What we are seeing in Oregon, as far as Oregon is concerned, is more autism in a state than in a country, and that’s pretty disturbing,” said Dr. Jonathan Gruber, the co-author of “The Great American Sleepover” and the Nobel Prize-winning economist.
Gruber is the author of a new book about autism titled “The Good Child: Why Children Are Naturally Good.”
He says autism has become so normalized that parents who had autism in the past are being pushed into hiding it.
“Parents who are being told to hide the diagnosis of autism from their children are also being told not to go public with the condition,” Gruber said.
“It is really scary to think that a parent could not tell a child, ‘You know what, it’s a mental health issue.
There’s nothing wrong.’
They have a right to know that and have the right to ask questions.”
A few months ago, Sara Lee got a letter from the Oregon Health Authority that was meant to make her feel safe.
It was sent by a representative from the State Department of Human Services.
The letter explained the importance of telling parents that their child may be on the autism spectrum, and gave the Lee family the chance to opt out of the registry.
“So we are very grateful that they were able to tell us that the state did not require that we provide them with a copy of our medical records, and we are not required to provide them a copy,” said Lee.
Sitting in front of her son, the two parents are not sure if they’re comfortable sharing their story.
Lee says she doesn’t want the family to have to face the stigma.””
We’re just not sure what that would look like.”
Lee says she doesn’t want the family to have to face the stigma.
“If we had to go through this, then it would have been worse.
And that’s why we have a problem, is because of the stigma,” said Sue Lee.
“But we have to work with it, because the system is out of control.”
“This is not a medical problem.
This is a mental issue,” said Jill Lee.
For now, Sara and Jeff are taking the fight to their doctor.
“I would like to go back and see my pediatrician,” said S.J. Lee.